Myalgic Encephalopathy and Chronic Fatigue Syndrome have long been poorly understood disorders. Using new biotechnological techniques the underlying pathophysiology of the syndrome(s) has been unmasked. Several treatable clinical entities have been discovered.
PROGRAMME
Chairpersons: Professor Ola Didrik Saugstad, MD, PhD and General Practitioner Mette Sophie Johnsgaard, MD
09:00 - 09:30 Registration, coffee/tea
09:30 - 09:35 Welcome Ellen V. Piro, leader, Norwegian ME Association
09:35 -10:00 ME in Norway Professor Ola Didrik Saugstad, MD, PhD, FRCPE, Department of Paediatric Research, Oslo University Hospital, Rikshospitalet
10:00 -10:15 Film about a severely ill ME patient
Facts & Figures
10:15 -10:45 ME in 2009: Overview of Current Scientific Research Data Including a Study on Severely Disabled Norwegian Patients Professor Kenny De Meirleir, MD, PhD, Professor of Physiology, Pathophysiology and Medicine at the Vrije Universiteit Brussel, Belgium; Internist at Himmunitas Foundation, Brussels, Belgium
10:45 -11:00 Coffee/tea break
11:00 -11:45 Scientifically Based Work-up in ME Patients Professor K. De Meirleir
11:45 -12:45 Lunch (open for questions from the press/media)
12:45 -13:15 ME is a Treatable Disorder: Treatment Outcome Based on Scientifically Based Medicine.Professor K. De Meirleir
13:15 -13:45 Intolerances & Diet Guidelines in ME Christine Tobback, BSc in Food Sciences, Dietician specialized in ME and Food Intolerances/Allergies, Himmunitas Foundation, Brussels, Belgium and Lillestrøm Helseklinikk
13:45-14:00 Coffee/tea break
14:00 -14:15 Example of a Norwegian Clinic Specialized in ME/CFS General Practitioner Mette Sophie Johnsgaard, MD, Lillestrøm Helseklinikk
14:15 -14:30 A Patient’s Experience & short cuts from coming documentary Anette Gilje, BA in Business Administration, Writer and Coach. Film directed by Pål Winsents, documentary filmmaker
14:30 -15:00 Open forum/Questions
Enrolment at: www.me-forening.no
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